Archive

Social Security

Well, that was soul destroying.

I just watched a Channel 5 report, broadcast yesterday, about a couple who both WANT to work but are unable to do so thanks to the wife’s impairments. She is not physically fit enough to work so, as a result, she claims Welfare Benefits but she’s now being punished for this. The little money she gets is being cut and cut and cut gain and there’s nothing she can do about it.  She cannot go out to work, she’s too disabled to do so. All she is being told to do by politicians is to get a job, only this week Theresa May said “Working is the best way out of poverty” what part of SHE CAN’T don’t they understand?

As someone who is in a similar situation, this report rang very true. It’s all cuts and it’s so hard when there’s nothing you can do about it, you just CAN’T go out to work. I am largely restricted to a bed in my front room thanks to my MS and the restrictions it places on me and it feels like I am being punished by the Government for daring to be sick. I didn’t ask for this, it happened and, like so many other Disabled People, there was nothing I could do about it. I was diagnosed with Multiple Sclerosis in 1984. Just like the vast majority of impairments, this was not my fault and there was nothing I could have done to stop it, it just happened and I was left to get on with it as best I could. Very sad but life goes on. I’ve been a full-time wheelchair user since 1992/3ish but I still managed to work, full time, until 3 years ago when infected pressure sores put me into hospital and then this bed. I WANT to work. I LOVED working. I loved my job and the camaraderie I found with my colleagues.  I loved what I did every day. In my view, it was the best job ever. I was an Information Officer with a National Charity and I loved being able to help other people but, unfortunately, I physically, I can’t do it any longer. My impairment put a premature stop on my ability to go out to work. I didn’t choose this lifestyle, no-one in their right mind would, I’d love to change it but I can’t. Having minimal money is bad enough but being told, continually, by politician after politician that I should get a job if I want to make my life better is just rubbing salt in the wound. What part of “I CAN’T” don’t they understand?

And then there are disabled people who WANT to work and who TRY to get a paid job so they can work their way out of poverty, as we are told to do, but they are being prevented from doing so by Society’s attitude toward disabled people. We often have no problem finding a volunteer role but, for some reason, these employers don’t want to pay us to do the same jobs. They are happy to take us on as volunteers but, as soon as the possibility of a salary is mentioned, heads start to be shaken and the excuses rain down. A friend has just said to me “I also want to work and get out and do part time. I applied for various jobs after leaving college in 2005ish. No-one wanted to know so I stopped applying and did volunteering instead but that doesn’t solve the money issues, it just gets you out of the house.” And that begs another question – if a disabled person is perfectly capable of successfully holding down an unpaid, volunteer role, what is it about their impairment that makes employer think they would be unable to hold down the same or a similar role if it was paid?  

How much longer are Disabled People going to be told to get a job and work our way out of poverty? How much longer are w going to be blamed for something that is not our fault. We didn’t ask to be sick so stop punishing us for it, after all Mrs May, next week it could be you. Listen to what we are telling you and stop telling us to do the impossible. We KNOW that working for a living would be the best route out of poverty for us but, for many of us, work is an impossible dream. Our impairments are stopping us from doing what you are forever telling us to do. Getting a job and working our way out of the poverty you are inflicting on us.

So, for the last time, what part of ‘we’d love to work our way out of poverty but we can’t’ don’t you understand?

WE JUST CAN’T, OK?

I am so happy.

Saturday was a good news day for me.

After several weeks of waiting, I finally received the two brown envelopes through the letterbox which told me how I’d done with my enforced PIP (Personal Independence Payment) application and my ESA (Employment Support Allowance) reassessment and I was successful for both Benefits.

And, further to that, a very good family friend also received her brown envelope for PIP on Sarurday as well and she’s been successful as too. Virtual High Fives all over our social media pages let me tell you – we were delerious. We both got to sleep properly for the first time in quite a while that night and we can now both breathe freely once more because we know that our finances are guaranteed for at least the next few years at any rate.

Brilliant!

But, there is something we both want to know. Why is it that the maximum award we could receive was for ten years and then we will both need to go through the full assessment procedure once again.

Why?

Why just ten years?

I have MS. I am unable to walk, work or care for myself at all, I am a wheelchair user, I cannot dress myself, wash or bathe myself, prepare my own meals or feed myself without help. I have a catheter and I spend the majority of my time stuck in bed, and I am not going to get any better. I can only ever stay the same or, as is more likely, get worse. My friend has a visual impairment. She cannot see to look after herself or her child. She also needs help with so many things on a day-to-day basis. And, guess what, she will never recover either. Just like me she will stay the same or get worse for the rest of her life. There is no magic bullet that can cure either of us. And, for both of us, this is for always. This is for ever. Our impairments are degenerative and incurable. And, thanks to our impairments, neither of us are to ever be able to work and support ourselves, however much the Government would like us too.

But, here’s the thing. Both of us have been transferred to PIP from the old Benefit, Disability Living Allowance (DLA), where we both had life-time awards. Now we are in receipt of PIP, we don’t. The old Benefit understood that neither of us would improve – ever – so we were given awards that recognised this fact. Under DLA we both recieved awards that meant we would not be pestered, made to fill in intrusive and invasive forms the size of a small novel, questioned, examined, prodded, poked and assessed as if we were making it up and were lying about the difficulties we had in our everyday lives because of our impairments. Thanks to the transfer to PIP, we will now have to go through this all over again in ten years time. And, if we survive that, ten years further on from there too. And we’re not the only people to experience this. Other people with incurable, lifelong conditions are getting the same result. Ten years is the max.

Do the boffins at the DWP know something we don’t know? Is there a cure for MS, for blindness, for so many other impairments just round the corner?  

All this ten year thing will do is cause worry, stress and countless sleepless nights for disabled people and their families and cost the Tax-payer millions. People with incurable impairments will need to be sent forms to complete that have to be printed and posted at a considerable cost to the State. People with incurable impairments will need to undergo unnecessary assessments, undertaken by paid assessors at home or at disability testing centres at a considerable cost to the State. People with incurable impairments will need to be sent letters and copies of their assessment reports telling them they have been re-awarded their Benefits that have to be printed and posted, at a considerable cost to the State.  It does not make sense.

What’s wrong with having a Life-time Award for disabled people with incurable life-long, degenerative impairments? An award that recognises that there are some disabled people who will never get better and will always need help. If people are already getting the maximum award they can get and can’t improve, what’s the point in checking to make sure that they still can’t do the things they couldn’t do ten years earlier? If there is no more money available, if the award cannot go up, if things can’t change what’s the point? People who are not going to get better don’t need to be reminded of this fact every ten years.

Once someone has been assessed, if they have been awarded the maximum available and there is no chance of anything changing apart from things getting worse then just leave it alone. Stop the endless form-filling, stop the endless prodding, poking and assessing, stop the printing and posting, stop the endless stream of brown envelopes, stop the stress, stop the worry. It benefits no-one, it saves nothing and it’s all  done at considerable cost to the Taxpayer.

OK Theresa and Jeremy and Tim and Nicola and Leanne and all the other pavement walking, door knocking, Manifesto-pledging Parliamentary candidates currently pounding our Nations’ streets, I have some questions for you. And, as a disabled person, I’m pretty sure there are many others from my community who have questions for you too. Why are you not speaking to us? Don’t we count? Don’t our votes matter to you? I hope not.

What I want to know, exactly, is what the political big-wigs and hard-hitters and movers and shakers in this country can offer to us? What promises can you give to all of us. What promises or pledges will you make to us? According to all the statistics I have been able to find, there are around 12-13 million disabled people in this country, what are you going to do to our lives any better for us? Are you totally disregarding the collective power and magnitude of disabled people’s votes and the votes of our families and friends? I hope not. Do you really think you can continue to either demonise us or watch others doing the demonising without us noticing? I hope not. Are you going to continue putting our needs to the back of the queue? I hope not. Are you going to go on ignoring us? I hope not.

Well, here are my questions at any rate.

We are told that Social care in this country is in crisis. That there is not enough money to pay home-carers and unpaid carers a decent wage or benefit that reflects what they do to support and enable us. What are you going to do about it? We are the net users of that care, what are you planning on doing to alleviate the situation and ensure that we get the care we want and need to allow us to live our lives to the full?

What are you going to do?

Many of us need to use aids and adaptations in our daily lives such as hoists and wheelchairs and hearing aids and aids for people with visual impairments. What are you going to do so that we can all get the best equipment we need to live without having to fight for every nut, bolt, screw, , plug, cable and electronic component?

What are you going to do?

Then there is the constant battle to find a home, a place to live which can cater for our access needs and accommodate us properly and in comfort. It’s often one of the greatest obstacles we face but one where we appear to get little or no help in getting what we need. What are you going to do to ensure that there are houses and flats and bungalows available which allow us to live in the community with our families, alongside our friends and neighbours without having to fight for funding for alterations and adaptations?

What are you going to do?

How are you proposing that your party will ensure that disabled children and young people can receive the education they need and deserve alongside their non-disabled compatriots? How are you going to try to ensure that they can all study together and not be segregated due to an impairment meaning the school or college is physically inaccessible for all?

What are you going to do?

Everyone falls sick at some point in their lifetime, what are you going to do to ensure that everyone can access the healthcare we all need and not find it being rationed according to how much we need it and how expensive it is? How are you going to give us access to the doctors and specialists and the nursing professionals we need in our hospitals? Are you going to ensure that these professionals receive salaries that reflect their skills and dedication? Are you going to make sure that they have working conditions such as hours and breaks that allow them to do their jobs to the best of their ability and not want to leave?

What are you going to do.

Then there the employment thing. We are told that everyone must work and get a job. What are you going to do to ensure that disabled people who can work get the support they need to do so safely and successfully and that those that can’t work due to their impairments are not demonised and punished for daring to be sick and disabled. Many of us would like to have the opportunity to do something, however small, what are you going to do to help us? How are you going to promote disability in the workplace so that those of us who can work and want to work get the support we need and the opportunity to do so?

What are you going to do?

Talk to us and tell us how you are going to help and support us. Why should we vote for you and your party as opposed to the other parties and their candidates? What are you going to do that will make a difference for us? Don’t write off 13 million potential voters. Please talk to us and tell us what you’re going to do to help us. If you want my vote give me a reason to put my cross next to your name on the ballot paper. What difference are you going to make to my life? Why should I vote for you, please tell me.

What are you going to do?

Oh goody!

Such fun!

The amazingly incompetent DWP strikes again!

Brief bit of background info – I am currently in the process of being transferred from the Disability Living Allowance I have been receiving since 1998 onto the new Personal Independence Payment. Around six weeks ago a kind and long-suffering friend helped me complete the frighteningly lengthy claim form, in excruciating detail, which I then returned, complete with copies of my Social Services and District Nurses Care Plans as evidence that I was not tell lies or over-egging the situation and my needs.

Well, yesterday I received a letter saying they were coming to see me to do a home visit and check that I really am as disabled as I said that I am and that I am really in need the help I say that I do.

Great!

No real problem with a personal visit and assessment except for the fact that it will be a colossal waste of both their, and my time.

First of all the appointment is for 9am-11am. Well, that’s not convenient. My carers come at 9.30am to wake me up, wash me down, attend to all my personal care needs, get me ready for the day and provide me with my breakfast. The assessor will just have to wait in the kitchen whilst I get my full body wash, have my catheter bag emptied and my incontinence pad changed. I’m not having them in my room to watch any of that.    

Secondly, my carers are here for around an hour for my morning visit, and can’t change their times as the have several other clients to see, so the assessor really will have to wait in the kitchen until they have finished everything they have to do.

Thirdly, in order to ensure that the assessors don’t, themselves, lie in their report ,about what they ask me and what I say to them (there are too many reports of this happening with other disabled people for me to take the risk), I will be recording the whole thing. The DWP allow this, if you inform them in advance that this is what will be happening, but it needs to be recorded on a double cassette or CD recorder so that I can keep one one copy and that they can take the other with them. No digital recording on a computer, tablet or laptop, no dictaphones, nothing modern, just an old fashioned cassette or cd recorder. Now, how many people still have one of those?

Not me.

Why am I going to have to go through this indignity yet again anyway? I fully understand the need to ensure that Welfare Benefits are going to the people that are actually entitled to them and need them. But really. Can’t the people at ATOS Healthcare read? I sent copies of my Care Plans for a reason – as proof that I am genuinely disabled. Are my Social Worker and my District Nurses really going to spend time detailing all the help I need if I didn’t actually need it? Is my Local Authority really going to be spending an inordinate amount for carers to come in to do everything for me on a daily basis or no reason? Somehow, I don’t think so.

The pen-pushing jobs-worths in the DWP need to learn to read and start employing some common sense, if, of course, they know what common-sense is. Disabled people, with genuine, documentary evidence of their impairments and the help they need just to exist, should not be hounded, day after day, to prove every little thing, in front of witnesses. It’s not right and it should not be happening. I am an emotionally strong woman but, even I am beginning to feel dispirited and depressed by the constant badgering. For other people all this disbelief and hounding and assessing and justifying themselves can be, and often is, the straw that broke the camel’s back.  

Employ some sense DWP, I beg you. If you ask us to send you medical evidence which proves our claims when we make them, do us the courtesy of actually reading the evidence we send you. You are looking for fraudulent claims so you can stop spending the taxpayer’s money on claims made by people who are not entitled to Welfare Benefits, so stop wasting our money going after people who really should and need to be getting that help and can prove it. What is this country coming to?

As I’ve said before, only this week, would you please just leave me alone. I, and so many other disabled people, have had enough. Learn to read and start checking the evidence you ask us to provide. Doctors and Consultants, social workers, District Nurses, Medical Professionals, don’t write these reports for their own amusement, they write them for a reason. Do them, and us, the courtesy of reading what these reports say and then start going after the reall fraudsters instead of us.

We’ve had enough.    

I am completely and utterly fed up.

Why can’t the DWP just leave me alone.

I have received yet another lengthy form from them which I have to read, complete and return, by the beginning of April.

This time it’s for a ‘Capability for Work Assessment’.

Its not the first Government form I have had to complete recently either. I had to deal with a Personal Independence Payment (PIP) form only last month after they decided that I, alongside many, many other disabled people, needed to be transferred from the Disability Living Allowance (DLA), which I have been receiving since 1998, to the new PIP Benefit instead. It’s not even as if completing either of these forms will give me any more money, the amounts will remain at exactly the same, pitifully small, levels. We never get any type of pay rise whatsoever.

And, as far as my impairment is concerned anyway, there has been no miracle cure either. No improvement, no divine intervention and no miracle medical advance in the past quarter of a century. My Multiple Sclerosis hasn’t got any better during the intervening years between diagnosis and now, it has only got worse. Thirty years on and it has only ever deteriorated.

But, despite this lack of movement, I still have to go through the form filling merry-go-round all over again.

What a complete waste of my time, their time, my ink, their ink, reams of their paper and their postage.

It’s not as if they’re short forms either. They expect me to write a novel, citing chapter and verse, excruciating detail after excruciating detail, about my condition and how it affects me on a day to day basis for every single question and there are an awful lot of questions. The new form is twenty-three pages long, the PIP form was much longer. I even have to give full contact details for my GP, my specialist nurse and my Consultant so they can all be sent a form to complete too where they will be asked to confirm that I’m not lying, exaggerating my condition or trying to cheat the system.  

I realise and fully acknowledge that the Government needs to make sure that the Taxpayer’s money is spent properly and wisely and that the people who are in receipt of Welfare Benefits are actually entitled to the money they are claiming but, for a disabled person diagnosed with a well-known and well-documented, degenerative condition which is never going to improve, however much the DWP, and I would like it, is, in my opinion, pointless.

I am now restricted to my bed most of the time, only able to get up for, at most, one day at a time from 10am until 8pm and then needing 3 or 4 days recovery in bed afterwards before I can do it again. I cannot get out of bed or dress myself without help from two trained carers. I need to be washed and dressed by someone and then hoisted from my bed and put into my wheelchair for the short periods when I do get up.

Exactly how many times and in how many ways do I have to tell the DWP that I cannot walk, cannot stand, cannot move from one chair to another unaided, am doubly incontinent, have a catheter, and have to use an electric wheelchair. I cannot write with a pen or pencil, lift a carton containing a pint of liquid, put something in my top pocket, fold a letter and put it into an envelope  or even move an empty box  without help.

Why can’t they just leave those of us with a life-long, incurable, degenerative impairment, such as MS, alone, once we’ve told them about our condition and the affect it has upon us. Do they think we need to be continually reminded of the effects of our conditions?  No matter how many times they ask, and regardless of the never-ending avalanche of paper they keep sending me, when will they realise I am not going to get better and that having to complete form after form is not going to help.

I would dearly love to be able to get up and go out to work but it’s not going to happen. All these endless forms do is make me feel depressed and distressed thanks to being constantly badgered and reminded what I can no longer do and what I am unlikely to ever be able to do again. They don’t ‘incentivise’ me at all so stop trying. Read my responses on both this, and the previous form you sent to me, make a note of them and then employ a little bit of common sense before you try asking me again. I’m stuck with this disease until the day I die and I don’t need you to keep reminding me. I am well aware of that fact without your havy-handed and insensative intervention.

I have only one further thing I want to say to you on this subject and I would be grateful if you listened for once.

Please leave me alone…

Sorry. I am more than just a little bit angry.

Yesterday, as I usually do, I switched over to my daily dose of ‘Daily Politics’ on BBC2 at lunchtime and saw something that made me fume.

The programme started off with it’s usual collection of serious stories such as John Major’s speech about leaving the EU, rebels in the House of Lords and a variety of other Brexit related topics but, at the end of the program, and probably as a form of light relief, they showed the annual Parliamentary pancake race. MPs and Lords -v- journalists, ‘sprinting’ round a marked course, in the pretty little park by the Thames, whilst trying to toss cold and inedible pancakes.

Nothing of national importance, just a bit of fun.

Well, it was until they did an interview with one of the winning team of politicians. And it was that which made me fume as I munched my midday meal. My anger was directed towards one of the successful team of Tory MPs.

I can’t remember his name but, what he said, infuriated me.

When the presenter asked him why he had taken part in the race, the MP laughed and said that it was just a bit of fun but, it had a serious side too and helped raise money for charity. He was then asked which charity and he said ‘Rehab’.

Now, it’s not the Charity I have a problem with. Rehab do great work and, like so many other charities, needs whatever money it can get. That’s not it, that was not the problem. No, it’s what this politician said next that made me so angry. He gave a little laugh and then said “It’s a bit of a laugh and it’s good to be supporting a charity that is looking to help promote independent living for disabled people”.

And that was the point my cage was well and truly rattled.

How dare he say this only a day after ‘Personal Independence Payments’, the most important Welfare Benefit for thousands of disabled people, was cut for new claimants by HIS party. And this isn’t the first cut or major change either, it is just the latest of many. Employment Support Allowance has been severely restricted, Attendance Allowance is under threat. Unfair PIP assessments have lead to disabled people losing their cars or being denied benefits entirely. The Independent Living Fund has been axed. Cuts to the Access to Work scheme are imminent. The financial assaults by this Government on the independence of people who who are sick and disabled, through no fault of their own, has been neverending.

And then we get idiots like this politician almost rubbing it in.    

If he really cared about helping disabled people gain independence then maybe he should have done something concrete to actually help and voted against this move instead of just running around a square, flipping pancakes, badly. Maybe he should actually look at the harm his Party’s policies have done. Disabled people have lost so much as a result of the never ending assaults on our hard-fought for allowances and benefits. People have been restricted to their homes because of these cuts. People have lost their jobs because of these cuts. People have lost their vehicles because of these cuts meaning they have lost independent access to local shops, their GP’s surgeries, life-saving hospitals and vital leisure activities. People have lost their homes. People have actually died and he doesn’t even seem to care.

Here’s an idea for you, oh unknown Tory Politician. If you really want to support disabled people and help us gain our independence why don’t you try opposing proposals to cut our support instead of waving it through on the nod. Pancake racing may be fun and result in a great photo-opportunity for you but it actually doesn’t help us. It may raise a bit of cash for charity but cash for our benefits could do so much more for us. Try cutting the cuts and see what that does for our independence, you might be surprised.

Flipping your pancake, running in the park and posing in your shorts and T-shirt on TV won’t really change anything for us but flipping your support for punishing policies and opposing even more cuts just might.

Last week I had one of my regular long chats with my wonderful father and, as it often does, what he said got me thinking. Why don’t more older and disabled people know about all the things they are entitled to from the State and that they deserve to receive? How many lives could be improved and made easier if people just knew what’s out there to help them? Welfare benefits, home helps, aids and appliances, it’s all there and available but people often don’t know about it or don’t realise it applies to them and their own particular circumstances.

My father and my Step-Mother are a case in point. They are now in their 80s and their health is not as good as it once was. They both have trouble walking any distance due to disablin medical conditions and in doing all the things they used to delight in. They have had to slow down and do less than they used to. But, with the right help and support, they can still do what they want, when they want to do it. They can go on leading the happy, enjoyable, fulfilled lives they always have done and, more importantly, be able to continue to do so for many years to come.  

A couple of years ago I realised that neither of them knew about one of the main Welfare Benefits they were entitled to and, in my opinion, should have been receiving for several years, namely Attendance Allowance. No-one had ever told them about it, let alone mentioned it, even in passing. Attendance Allowance is a payment made to older people who need a little bit of extra help due to the restrictions placed on them, not only because of their age but also if they have any disabling medical conditions as well. They can, of course, use the money how they want but most people use it to pay for some kind of home care or for aids and adaptations within their homes to make life easier. It’s not a huge amount but it’s regular and it can help. I told my father and Step-mother about this benefit, they both applied and were awarded it. And what a difference it has made for them. My father has been able to buy himself a motorised scooter which has given him the freedom and independence to go out and do what he wants in the small seaside town where he lives. My Step-mother has been able to pay for a cleaner to come in once a fortnight to deal with the more awkward elements of housework that needed doing and that she was no longer able to tackle as easily as she once was. As far as I am concerned, this is exactly what the benefit is for, to give two older people who have worked hard all their lives the freedom and ability to remain in their own home rather than having to consider selling the house they love and have lived in for so many years and moving into sheltered accommodation or a care home.

But why did it take me to tell them about it? If it wasn’t for the fact that I have worked for charities for older and disabled people, giving advice and information on benefits, for many years they might never have found out what they could get. Why didn’t someone else such as their GP or their medical specialists give them the information. People find out about the help they may be able to get despite the system and not because of it.

Today I have seen reports about £12bn in unclaimed benefits. I wonder why. Could it be because people don’t know or understand what they are entitled to? There must be a way of ensuring that more people find out what there is out there for them and giving them the help they may need with applying for those things. Maybe, instead of having work coaches and employment advisers in doctor’s surgeries it would be better and more efficient to have benefits advisers there instead. Professionals who could help patients understand what they could get and, more importantly in my view, assist with the complicated application process. After all, if people were in receipt of the all the help they are entitled to then they may not need to visit their doctor so often and could stay out of hospitals and needing expensive and invasive social care help for longer. It might cost a little more to do this but there would be savings down the line in other areas as a result. Consider the picture as a whole and not the individual elements in isolation. Give people an easy understanding of what they are entitled to, help them apply and get rid of the hurdles stopping people from getting it. It makes sense in the long term.

I am somewhat concerned that disabled people are in the process of shooting themselves in the foot.

Amongst all the comments and posts about David Cameron’s tax affairs and the Panama Papers on social media at present, there are also questions being asked about the fact that the Camerons claimed disability benefits on behalf of  their disabled son whilst he was still alive. The argument seems simple – should the Camerons have claimed Disability Living Allowance (DLA) for Ivan given the fact that they are a very wealthy family and had no need for the money or, was the act of claiming this benefit, fraudulent.

Simple question here, how?

The definition of fraud is wrongful or criminal deception intended to result in financial or personal gain. In what way was claiming a benefit, that Ivan was perfectly entitled to receive, wrongful or criminal deception?

It wasn’t. Therefore, in no way, can this be considered to be fraud. There might be some validity in a question being asked about the morality of a wealthy family receiving a welfare benefit but there can be no question at all asked about the legality of the claim. The Camerons were perfectly entitled to receive DLA on behalf of Ivan. He was a disabled child, the families of all disabled children were entitled to claim DLA on their behalf so the Camerons were entitled to the money they received.

I have no issue with that whatsoever.

Moreover, what they did with that money was their business and not ours. Did they spend it on Ivan or did it go straight into the family coffers? We don’t know. It could be argued that the money should have been put aside, into a trust or bank account for Ivan for when he was older, but again, why? We have no right to ask that question. If the Camerons were a poorer family, living on benefits, in social housing, needing to use a foodbank,  would we be saying the same thing?

Let’s be honest here. No we wouldn’t..

And that is tthe issue and the nub of my point. The Camerons received DLA on  Ivan’s behalf because he was disabled, not because of the amount of money the family did or did not have.

DLA – is a non-means tested benefit which is paid to a disabled person to compensate them, in part, for the extra costs they will experience because of their impairment and, in the case of disabled child, to help the parents with those extra costs. For some people and families it is more necessary to have this money than it is for others but everyone who is disabled is entitled to receive the money. Rich and poor alike.

Asking if David Cameron defrauded the benefits system by claiming DLA for his son is wrong. How could he have defrauded the system if his disabled son was receiving money, that every disabled person is entitled to receive, because of his impairment. We need to be so careful here, it almost sounds like we are asking for DLA and, nowadays, its successor, PIP, to be means tested. If we are asking if it was wrong for the Camerons to have received DLA for Ivan because they are a super-wealthy family, are we also saying that everyone who receives PIP or DLA, but also has income from another source, should not receive anything either? Are we saying that that is wrong too? We need to be very careful we don’t start, however inadvertently, saying that DLA/PIP should be means tested by questioning if David Cameron had a genuine need for Ivan’s DLA. You could argue, effectively, that of course he didn’t, but Ivan was still entitled to that money. If he were still alive, would we all be saying he should not receive DLA because his family is rich? I would hope not, because, if we did say that, we would be arguing in favour of means testing for PIP and I don’t think any of us want that. After all, does a disabled person who receives DLA/PIP, and who also works in a well paid job, have a genuine need for the benefit? Depending on how much they earn they almost certainly have enough for everything they need without any State help whatsoever but why should they? A disabled person does not ask for their impairment so, should they be penalised because of it? Of course not. Yet, by saying that David Cameron was claiming DLA fraudulently on Ivan’s behalf, that is exactly what we are doing.

Whatever else we think of him, his Party and his politics we must not allow this to colour our views by saying one rule for him and another for everyone else. His family’s tax affairs may be questionable in the extreme but there is no doubt that Ivan was a disabled person and that, as such, his family was therefore fully entitled to claim benefits on his behalf. The money received by the Camerons, however distasteful we find it that they got anything at all given their wealth, was not claimed fraudulently and we are only doing ourselves a disservice if we say anything else.  

No wonder people in this country believe disabled people are inherently scroungers, receiving money for nothing, when we are greeted by headlines in national newspapers and on the TV, like the ones I have seen today, saying that our welfare benefits are to be cut by £150 per week in next week’s Budget. Benefits that we receive for being sick and disabled. Benefits that are supposed to help put us on a level playing field with our non-disabled fellow citizens. Benefits that we ourselves, or our families, have contributed to by way of taxes and NI contributions.  No wonder we are being vilified and thought of as living a pampered life of luxury when we’re not. No wonder we get shouted at and abused in shops and on the streets by people who are also struggling in the gloom of austerity. No wonder when misinformation such as that I have seen and read today are being quoted on Social Media and by the media as being fact.

These figures are not right. They cannot be right. It is mathematically impossible for them to be right. Figures, implying that our benefits can be cut by £150 every week and still leave us with enough to live on, make it sound as if we must receive an absolute fortune but this is far from the truth. Where these figures coming from?  I don’t know but they are not right. Don’t get me wrong, I’m not saying that the situation is not dire, it is, but, by giving out incorrect numbers as fact, the public are being led to believe we can afford to absorb the cuts. We can’t. The problem is, as far as I am concerned, that when the real figures for the cuts are given they will have to be lower than £150 per week as we don’t get that much in the first place. It will look like the Government has listened and has toned things down a bit, when they haven’t. They can’t have done. However hard they try to make us believe it, they cannot reduce figures when the number they are starting from is so wildly out of kilter with reality. They look like they are trying to make it appear they have done us a favour. Well it’s not true. They won’t have because they can’t.

Let me show you the problem and try to set the record straight.

As someone who actually receives these benefits, the numbers quoted in the press and on TV didn’t sound quite right to me but I wasn’t going to kick up a fuss without being sure. I needed to know for certain or I would be doing exactly what I was complaining about and saying something that wasn’t true. So I checked and I was right. The numbers quoted are wildly inaccurate and misleading. PIP or Personal Independence Payments and it’s predecessor, DLA or Disability Living Allowance, the benefits they are talking about, are split into two separate payments, one for care and one for mobility. Disabled people are tested against a number of criteria and are then awarded points based on what we can and can’t do, the help we do or don’t need to do those things and what specialist aids and equipment we may or may not need to do those everyday tasks.  Current rates are set at weekly figures of £82.30 for care and £57.45 for mobility meaning that the most anyone can get for PIP or DLA, combining the two amounts together, is £139.75 per week, a figure that is £10.25 per week LESS than the amount we are reported to be losing every week thanks to Mr Osborne’s cuts. No wonder people who don’t actually know think we are all coining it in.

Where are these numbers coming from then? Are the press being told the figures by the politicians? Are people not even bothering to check that it makes sense? Are they just blindly believing and printing what they are being told? Don’t they even check for accuracy? That’s what it looks like to me and it’s sloppy, it’s not helpful and it’s wrong. If I, an ordinary citizen with no journalistic training whatsoever, can find accurate information on current benefit rates by typing a simple question into Google,namely ‘What are PIP rates for 2016/2017’ surely even a junior hack could do the same thing. Getting it wrong is not helpful, especially for the people you are trying to help and support, it can even make things worse. Please try to check what you are printing or saying before you print or say it, what is so hard about doing that?

Interesting.

I have been watching ‘This Morning’ on TV and they were doing a phone-in about a storyline that’s coming up on Corrie and it got me thinking. Given that many people could get help with their issues by seeing characters in their favourite soap operas going through the same thing, could this be exploited in some way? I know that, quite often, we get the helpful message at the end of a programme giving a phone number that people can ring if they have been affected by any of the issues they have just seem, but could more be done?

I think it could.

Soap operas are supposed to represent a dramatised view of everyday life, but do they? As far as I am concerned, we are supposed to relate to various characters because they are going through the same life challenges as us. Sure, most of the time the people on the Street, in Albert Square or up in the Dales seem to lurch from crisis to crisis but can any of these crises be used to help us?

I think they can.

Let’s look at Eastenders, my soap of choice, how come none of the characters appear to be unemployed? They seem to come out of school and waltz straight into a job on the market, in the cafe or convenience store or at the Vic. Is that realistic? No, it isn’t. Most young people move from school to Uni, College, an apprenticeship or, in many instances, down to the local Job Centre to sign on for JSA or ESA. Why does this never seem to happen in Eastenders? It also appears that every single character has a job on the Square. Not one of them, as far as I can see anyway, leaves their house in the morning to battle their way through London congestion to work in the city or somewhere else closer to home. No-one seems to return in the evening exhausted and stressed after another day in their boring office job, pen-pushing. That’s what the rest of us do, why not the Beales, the Mitchells or the Fowlers? Do they all work in the Square? What an amazing place Walford must be with full employment and apparent jobs available at the click of the fingers whenever they are needed. I almost want to move there myself.

Then there are the other opportunities there are to help viewers. What about the obviously disabled character, Donna, does she receive DLA and is she about to be transferred to PIP? In the real world, almost certainly, in the wonderful world of Walford, who knows. Disabled people nationwide are having to go through reassessments, invasive medicals and endless appeals, maybe Donna should have to go through this too. That way the viewing public could be guided towards all the wonderful, helpful organisations that are out there when it seems there is nowhere else to turn. When it comes to Welfare Benefits, a storyline that would resonate with so many people would be a character who is in receipt of JSA or ESA and who gets sanctioned for no real reason apart from a delayed bus making them late to sign on. Someone needing to use a Foodbank and dealing with the potential embarrassment and stigma this can cause. And what about that same character falling into debt and having to resort a payday loan company? Just seeing the problems that can cause and where people need to go to sort things out would be so helpful.

That, in my belief, is only the start of things. I would like to see stories that better reflect the problems of the wider community and potential solutions. I think that would be so helpful to so many. I know Soap Operas are not here to educate, they are here to entertain but surely education and entertainment can be combined. To all the writers and Directors and Producers out there, what about using your characters go through the same things that we do. We’ve had Hayley Cropper in Corrie and Dot Branning in Eastenders, give us more and reflect the lives we are all living every day. Have desperate people who are looking for help and support the same way we do. Show us some of the places we can go and some of the things we can do and you would be doing so much for your audience. Apparently the average Briton spends an entire year throughout their lifetime watching soaps. Help to make that a year well spent and not a wasted year. Help us to help ourselves and give us all some idea where we can go when it looks like there is nowhere. Do that and, I’m sure, we will all place greater value on our TV licences and resent the advertising revenue that is generated for big businesses on Commercial Channels less. Help us to help ourselves and, in exchange, we, your audience, will thank you from the bottom of our hearts.

Education and entertainment intertwined.

Think about it.