Archive

Independent Living

OK Theresa and Jeremy and Tim and Nicola and Leanne and all the other pavement walking, door knocking, Manifesto-pledging Parliamentary candidates currently pounding our Nations’ streets, I have some questions for you. And, as a disabled person, I’m pretty sure there are many others from my community who have questions for you too. Why are you not speaking to us? Don’t we count? Don’t our votes matter to you? I hope not.

What I want to know, exactly, is what the political big-wigs and hard-hitters and movers and shakers in this country can offer to us? What promises can you give to all of us. What promises or pledges will you make to us? According to all the statistics I have been able to find, there are around 12-13 million disabled people in this country, what are you going to do to our lives any better for us? Are you totally disregarding the collective power and magnitude of disabled people’s votes and the votes of our families and friends? I hope not. Do you really think you can continue to either demonise us or watch others doing the demonising without us noticing? I hope not. Are you going to continue putting our needs to the back of the queue? I hope not. Are you going to go on ignoring us? I hope not.

Well, here are my questions at any rate.

We are told that Social care in this country is in crisis. That there is not enough money to pay home-carers and unpaid carers a decent wage or benefit that reflects what they do to support and enable us. What are you going to do about it? We are the net users of that care, what are you planning on doing to alleviate the situation and ensure that we get the care we want and need to allow us to live our lives to the full?

What are you going to do?

Many of us need to use aids and adaptations in our daily lives such as hoists and wheelchairs and hearing aids and aids for people with visual impairments. What are you going to do so that we can all get the best equipment we need to live without having to fight for every nut, bolt, screw, , plug, cable and electronic component?

What are you going to do?

Then there is the constant battle to find a home, a place to live which can cater for our access needs and accommodate us properly and in comfort. It’s often one of the greatest obstacles we face but one where we appear to get little or no help in getting what we need. What are you going to do to ensure that there are houses and flats and bungalows available which allow us to live in the community with our families, alongside our friends and neighbours without having to fight for funding for alterations and adaptations?

What are you going to do?

How are you proposing that your party will ensure that disabled children and young people can receive the education they need and deserve alongside their non-disabled compatriots? How are you going to try to ensure that they can all study together and not be segregated due to an impairment meaning the school or college is physically inaccessible for all?

What are you going to do?

Everyone falls sick at some point in their lifetime, what are you going to do to ensure that everyone can access the healthcare we all need and not find it being rationed according to how much we need it and how expensive it is? How are you going to give us access to the doctors and specialists and the nursing professionals we need in our hospitals? Are you going to ensure that these professionals receive salaries that reflect their skills and dedication? Are you going to make sure that they have working conditions such as hours and breaks that allow them to do their jobs to the best of their ability and not want to leave?

What are you going to do.

Then there the employment thing. We are told that everyone must work and get a job. What are you going to do to ensure that disabled people who can work get the support they need to do so safely and successfully and that those that can’t work due to their impairments are not demonised and punished for daring to be sick and disabled. Many of us would like to have the opportunity to do something, however small, what are you going to do to help us? How are you going to promote disability in the workplace so that those of us who can work and want to work get the support we need and the opportunity to do so?

What are you going to do?

Talk to us and tell us how you are going to help and support us. Why should we vote for you and your party as opposed to the other parties and their candidates? What are you going to do that will make a difference for us? Don’t write off 13 million potential voters. Please talk to us and tell us what you’re going to do to help us. If you want my vote give me a reason to put my cross next to your name on the ballot paper. What difference are you going to make to my life? Why should I vote for you, please tell me.

What are you going to do?

I think I’m supposed to be grateful.

I think all of us disabled, and older people are supposed to say ‘Thank you’ to the Chancellor, Philip Hammond, for his much flaunted, much hyped boost of £2bn for Social Care in yesterday’s Spring Budget.

Well then.

Here goes…

Thank you Mr Hammond, you are so beneficent and generous.

Sure, £2bn is an awful lot of money, and, with any luck it, at least some of should help ease the Care Crisis we currently have in this country, but it can only help if it actually filters down to the people it’s supposed to be helping. My major concern is that it will be shared out amongst all the Social Services Departments, nationwide, and will just vanish into their usual, annual Social Care black hole. We, the older and disabled people who are the ones who are supposed to reap the benefit will probably get to see little, if any, of it at all.

As someone who is in receipt of Social Care, there I three places I can think of straight off where that £2bn could make a real difference if it was spent properly.

First of all, I would like to see the money being put towards ending the farce of the fifteen minute care-call. How can anyone in their right mind think that fifteen minutes is long enough to provide any form of meaningful care for a disabled or older person? It’s barely long enough to make a sandwich or boil a kettle for a cup of tea, let alone help a frail person access the toilet, get them dressed or undressed, make sure they’re comfortable and safe, cook a light meal and help them eat it, if they need help, make a bed and do a little light housework.

Some of Mr Hammond’s £2bn definitely needs to go towards this.

Secondly, the paltry amount Home Care workers get paid needs to be addressed.

When I was in receipt of Agency Care, via my Local Authority, the workers were receiving little more than the minimum wage, indeed, in some instances it seemed as if they were even getting less than that. I now get my care through a scheme called ‘Direct Payments’ whereby my Local Authority pays the amount they would have spent on Agency Care directly to me and I get to employ and pay for my own carers. In theory, this is a great plan and, for many, it works well but it is impossible to offer a decent wage for the work that needs to be done and therefore, get the most suitable carers. The amount I get, for example, allows me to offer an hourly rate of just £9.40, before tax and NI, hardly a fortune, especially when you consider the level of personal care I am expecting those workers to undertake.  I would dearly like to be able to offer more but, as someone with no private income whatsoever to fall back on apart from my Welfare Benefits, I am stuck with just the funding my Social Services Department allows me every month for my long-suffering and excellent carers. Hardly enough at all.

Some of Mr Hammond’s £2bn needs to go towards this.

Then thirdly, there’s something which doesn’t affect me personally as yet. The amount that is available for both short, and long-term, residential Care Home accommodation. How can we expect older and disabled people to receive good quality, dedicated care when they need intesive care or can no longer live in their own home, if the amount Residential Homes are given for each resident’s care package is so small? We can’t

Some of Mr Hammond’s £2bn needs to go towards this.

What I really want to see most after yesterday’s display of Governmental generosity would be a completely new Care Strategy for our country. There needs to be meaningful consultation with the Care providers, the medical profession and carers themselves, both Home Care and Care Home agencies and workers and the Care Recipients, namely all the older and disabled people who need help to live in comfort and with dignity. We need to be assured that any extra or new funding is being spent wisely and well and is contributing towards the wellbeing of those who need it most.  

Some of Mr Hammond’s £2bn definitely needs to go towards this.

I’ve been pondering.

Dangerous, I know, but the Daily Politics Show and the lunchtime news has got me thinking. Again.

And, today’s muse has led to me wonder what will be my, and our nation’s, enduring memory of our current Conservative Government.

What will we remember in the years to come.

What will be their legacy.

Good, bad or indifferent, what have Mrs May and her compatriots done that will stay with me past the end of her tenure in Number 10? What have they done which will leave lasting impression?

And I have just realised what I think it is.

Crisis after crisis. A never-ending stream of crises. My life, the lives of my friends and family, the lives of so many people in this country, appear to be doing little more than lurching from one crisis to the next. And the Government and its policies are largely the cause of this.

I know that we are in the midst of seismic political change in this country, with last year’s Referendum and the imminent triggering of Article 50, and that will crtauinly be unforgetable, but I don’t think that’s what I am likely to remember the most. I think the thing I will remember is the never ending series of crises we appear to be having. Day after day, week after week, month after month.

We currently have a major crisis in the NHS, due to a lack of funding, and our hospitals are struggling to deliver the medical treatment we all need.

We currently have a crisis in Social Care, due to lack of funding, and our Local Authorities are struggling to ensure that our disabled and older people receive the care in their own homes they need to live the independent and stress free life we all deserve.

We currently have a crisis in our education system, due to a lack of funding, thanks to a teacher supply shortage, unmanageable workloads and serious underfunding placing an insurmountable pressure on teaching staff in schools and colleges

We are now told we have a crisis within our Police Service, diue to a lack of funding, where forces nationwide are having difficulty recruiting and retaining detectives, which is harming response times and there has been an erosion in neighbourhood policing.

And what is it that all these crises have in common?

Funding, or rather, a lack of it.

Our health service is underfunded. Our Social Care Services are underfunded. Our Police Force is underfunded. Our Education System is underfunded. Underfunding seems to be the cause of crisis after crisis and this serious lack of money across the board will mean, in reality, that things can only get worse. Our services cannot continue to be run on a negative bank balance. Things need to change and they need to change fast. I’m not an economist, a financial whizz-kid or a politician but, even I can see that more money needs to be found, from somewhere, and it needs to be found soon if we are to avert a cataclysmic crash. And, finding that money, may be the greatest legacy this Government could leave both us and the generations to come.

There must be a way we can be led back from the brink of disaster and, as far as I am concerned, it’s up to Mrs May and her cohorts to do it if this plethora of problems is not going to overwhelm us and ruin our lives, and the state of our nation, for generations to come.

Finding the solution to all these crises would be the greatest legacy this Government could leave. We can only hope they find that solution soon, before it’s too late. .  

Sorry. I am more than just a little bit angry.

Yesterday, as I usually do, I switched over to my daily dose of ‘Daily Politics’ on BBC2 at lunchtime and saw something that made me fume.

The programme started off with it’s usual collection of serious stories such as John Major’s speech about leaving the EU, rebels in the House of Lords and a variety of other Brexit related topics but, at the end of the program, and probably as a form of light relief, they showed the annual Parliamentary pancake race. MPs and Lords -v- journalists, ‘sprinting’ round a marked course, in the pretty little park by the Thames, whilst trying to toss cold and inedible pancakes.

Nothing of national importance, just a bit of fun.

Well, it was until they did an interview with one of the winning team of politicians. And it was that which made me fume as I munched my midday meal. My anger was directed towards one of the successful team of Tory MPs.

I can’t remember his name but, what he said, infuriated me.

When the presenter asked him why he had taken part in the race, the MP laughed and said that it was just a bit of fun but, it had a serious side too and helped raise money for charity. He was then asked which charity and he said ‘Rehab’.

Now, it’s not the Charity I have a problem with. Rehab do great work and, like so many other charities, needs whatever money it can get. That’s not it, that was not the problem. No, it’s what this politician said next that made me so angry. He gave a little laugh and then said “It’s a bit of a laugh and it’s good to be supporting a charity that is looking to help promote independent living for disabled people”.

And that was the point my cage was well and truly rattled.

How dare he say this only a day after ‘Personal Independence Payments’, the most important Welfare Benefit for thousands of disabled people, was cut for new claimants by HIS party. And this isn’t the first cut or major change either, it is just the latest of many. Employment Support Allowance has been severely restricted, Attendance Allowance is under threat. Unfair PIP assessments have lead to disabled people losing their cars or being denied benefits entirely. The Independent Living Fund has been axed. Cuts to the Access to Work scheme are imminent. The financial assaults by this Government on the independence of people who who are sick and disabled, through no fault of their own, has been neverending.

And then we get idiots like this politician almost rubbing it in.    

If he really cared about helping disabled people gain independence then maybe he should have done something concrete to actually help and voted against this move instead of just running around a square, flipping pancakes, badly. Maybe he should actually look at the harm his Party’s policies have done. Disabled people have lost so much as a result of the never ending assaults on our hard-fought for allowances and benefits. People have been restricted to their homes because of these cuts. People have lost their jobs because of these cuts. People have lost their vehicles because of these cuts meaning they have lost independent access to local shops, their GP’s surgeries, life-saving hospitals and vital leisure activities. People have lost their homes. People have actually died and he doesn’t even seem to care.

Here’s an idea for you, oh unknown Tory Politician. If you really want to support disabled people and help us gain our independence why don’t you try opposing proposals to cut our support instead of waving it through on the nod. Pancake racing may be fun and result in a great photo-opportunity for you but it actually doesn’t help us. It may raise a bit of cash for charity but cash for our benefits could do so much more for us. Try cutting the cuts and see what that does for our independence, you might be surprised.

Flipping your pancake, running in the park and posing in your shorts and T-shirt on TV won’t really change anything for us but flipping your support for punishing policies and opposing even more cuts just might.