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Monthly Archives: March 2017

So, on Wednesday our glorious leader, Theresa ‘Will of the People’ May is going to trigger Article 50 and begin the process of ripping us, kicking and screaming, from the relative sanctuary and sanity of the EU. This is not something I voted for and is not what I wanted but it’s happening and there’s not a lot I can do now to change it. I’ve voted, I’ve blogged, I’ve protested, I’ve voiced my opinion, I’ve given countless explanations and justifications for what I believe but to no avail. It’s happening and, protest as I might, I don’t think anything can now stop it. All I can do is hope that when things go wrong, as I expect them to do, we will be allowed, by the other EU members, to rejoin.

But that’s a hope for the future. There are other more pressing, more immediate things which need to be challenged now before it’s too late. I have seen yet another news report about what Mrs M is proposing which, if it’s possible, scares me even more than leaving the EU. It scares the living daylights out of me. According to what I have just read, after triggering Article 50 on Wednesday, the government will then publish its Great Repeal Bill on Thursday.

The Great Repeal Bill? What’s that. We’ve all heard of it but how many of us know what it really means.

Well, according to everything I’ve found out so far and according to the original report I read, apart from anything else, this Bill will propose giving Government Ministers the power to change some aspects of European laws, when they have been incorporated into UK legislation, without needing the approval of Parliament.

Excuse me?

Can we just look at that again.

What is actually being proposed here?

This is a Bill which will give Tory Ministers the power to change our domestic laws without needing the approval of Parliament. This is a Bill which would give the Tories free rein to make whatever changes they want to our laws without any checks and balances. Without any way of stopping them, without any of us, or our elected representatives from other parties, having a say. I know one of the things the Brexit camp was advocating during the Referendum process was that by leaving the EU we could ‘take back control’ but was this really what the people who voted to leave the EU last June wanted? A Tory Government which can make up it’s own rules, unhindered, unopposed and unchallenged?

I don’t think so.

I really hope not at any rate.

In my opinion, as an idea, allowing a Government to do it’s own thing in this way is just so wrong, so frightening, so dangerous. I mean, as an idea it’s been tried before and it didn’t go too well then, so why we should, as a country, try it again defeats me. What is there about the idea which makes us think it could work this time when it went so terribly wrong last time. Nothing. Nothing good can possibly come from it. Have people really missed something we all supposedly learnt in our history lessons at school, or at least, did they not take sufficient notice of the lessons of the not so distant past not to say no, not again? Well, maybe we should take the time to look in our libraries and online for the information we all, so badly, seem to need. I know I only got a grade C at ‘O’ Level in the subject but, if I remember what I was taught correctly a certain Herr Hitler tried this trick too. In 1933, in Germany, the Enabling Act gave the German Cabinet, in effect, Chancellor Adolf Hitler, the power to enact laws without the involvement of the German Government, the Reichstag. Now, to me that sounds frighteningly familiar. To me, that sounds to be almost exactly the same thing that Mrs May is proposing for our country now. And I believe it is a step too far. Politicians from the ruling party getting rid of the laws they don’t like and imposing their own rules on the people without anyone being able to stop them from doing it. Just no. That is, in my opinion, a step too far down a path we should not travel. I am happy to admit that some of the laws that the EU makes may not the best and I’m happy to admit that some of these laws are not ideal for our country and may need tweaking but not without proper scrutiny and someone saying ‘No’ if necessary. When we elect our politicians we expect them to do this and keep us safe from legislation which could hurt us in the long term. And, the idea that our current Government, meaning the Tories, should be allowed to change things alone and at will is just terrifying and cannot be allowed.

We all need to write to our MPs, to our Party Leaders, to the Press, to everyone we can think of that may have any influence whatsoever begging them to try and stop this madness. We need to stop this country from becoming a dictatorship. Mrs May is proposing on taking a step too far down a destructive path which we should not travel and, somehow, she needs to be stopped before it’s too late.

Reusing a catchphrase from my childhood, we all need to ‘Just Say No’.

Oh goody!

Such fun!

The amazingly incompetent DWP strikes again!

Brief bit of background info – I am currently in the process of being transferred from the Disability Living Allowance I have been receiving since 1998 onto the new Personal Independence Payment. Around six weeks ago a kind and long-suffering friend helped me complete the frighteningly lengthy claim form, in excruciating detail, which I then returned, complete with copies of my Social Services and District Nurses Care Plans as evidence that I was not tell lies or over-egging the situation and my needs.

Well, yesterday I received a letter saying they were coming to see me to do a home visit and check that I really am as disabled as I said that I am and that I am really in need the help I say that I do.

Great!

No real problem with a personal visit and assessment except for the fact that it will be a colossal waste of both their, and my time.

First of all the appointment is for 9am-11am. Well, that’s not convenient. My carers come at 9.30am to wake me up, wash me down, attend to all my personal care needs, get me ready for the day and provide me with my breakfast. The assessor will just have to wait in the kitchen whilst I get my full body wash, have my catheter bag emptied and my incontinence pad changed. I’m not having them in my room to watch any of that.    

Secondly, my carers are here for around an hour for my morning visit, and can’t change their times as the have several other clients to see, so the assessor really will have to wait in the kitchen until they have finished everything they have to do.

Thirdly, in order to ensure that the assessors don’t, themselves, lie in their report ,about what they ask me and what I say to them (there are too many reports of this happening with other disabled people for me to take the risk), I will be recording the whole thing. The DWP allow this, if you inform them in advance that this is what will be happening, but it needs to be recorded on a double cassette or CD recorder so that I can keep one one copy and that they can take the other with them. No digital recording on a computer, tablet or laptop, no dictaphones, nothing modern, just an old fashioned cassette or cd recorder. Now, how many people still have one of those?

Not me.

Why am I going to have to go through this indignity yet again anyway? I fully understand the need to ensure that Welfare Benefits are going to the people that are actually entitled to them and need them. But really. Can’t the people at ATOS Healthcare read? I sent copies of my Care Plans for a reason – as proof that I am genuinely disabled. Are my Social Worker and my District Nurses really going to spend time detailing all the help I need if I didn’t actually need it? Is my Local Authority really going to be spending an inordinate amount for carers to come in to do everything for me on a daily basis or no reason? Somehow, I don’t think so.

The pen-pushing jobs-worths in the DWP need to learn to read and start employing some common sense, if, of course, they know what common-sense is. Disabled people, with genuine, documentary evidence of their impairments and the help they need just to exist, should not be hounded, day after day, to prove every little thing, in front of witnesses. It’s not right and it should not be happening. I am an emotionally strong woman but, even I am beginning to feel dispirited and depressed by the constant badgering. For other people all this disbelief and hounding and assessing and justifying themselves can be, and often is, the straw that broke the camel’s back.  

Employ some sense DWP, I beg you. If you ask us to send you medical evidence which proves our claims when we make them, do us the courtesy of actually reading the evidence we send you. You are looking for fraudulent claims so you can stop spending the taxpayer’s money on claims made by people who are not entitled to Welfare Benefits, so stop wasting our money going after people who really should and need to be getting that help and can prove it. What is this country coming to?

As I’ve said before, only this week, would you please just leave me alone. I, and so many other disabled people, have had enough. Learn to read and start checking the evidence you ask us to provide. Doctors and Consultants, social workers, District Nurses, Medical Professionals, don’t write these reports for their own amusement, they write them for a reason. Do them, and us, the courtesy of reading what these reports say and then start going after the reall fraudsters instead of us.

We’ve had enough.    

I think I’m supposed to be grateful.

I think all of us disabled, and older people are supposed to say ‘Thank you’ to the Chancellor, Philip Hammond, for his much flaunted, much hyped boost of £2bn for Social Care in yesterday’s Spring Budget.

Well then.

Here goes…

Thank you Mr Hammond, you are so beneficent and generous.

Sure, £2bn is an awful lot of money, and, with any luck it, at least some of should help ease the Care Crisis we currently have in this country, but it can only help if it actually filters down to the people it’s supposed to be helping. My major concern is that it will be shared out amongst all the Social Services Departments, nationwide, and will just vanish into their usual, annual Social Care black hole. We, the older and disabled people who are the ones who are supposed to reap the benefit will probably get to see little, if any, of it at all.

As someone who is in receipt of Social Care, there I three places I can think of straight off where that £2bn could make a real difference if it was spent properly.

First of all, I would like to see the money being put towards ending the farce of the fifteen minute care-call. How can anyone in their right mind think that fifteen minutes is long enough to provide any form of meaningful care for a disabled or older person? It’s barely long enough to make a sandwich or boil a kettle for a cup of tea, let alone help a frail person access the toilet, get them dressed or undressed, make sure they’re comfortable and safe, cook a light meal and help them eat it, if they need help, make a bed and do a little light housework.

Some of Mr Hammond’s £2bn definitely needs to go towards this.

Secondly, the paltry amount Home Care workers get paid needs to be addressed.

When I was in receipt of Agency Care, via my Local Authority, the workers were receiving little more than the minimum wage, indeed, in some instances it seemed as if they were even getting less than that. I now get my care through a scheme called ‘Direct Payments’ whereby my Local Authority pays the amount they would have spent on Agency Care directly to me and I get to employ and pay for my own carers. In theory, this is a great plan and, for many, it works well but it is impossible to offer a decent wage for the work that needs to be done and therefore, get the most suitable carers. The amount I get, for example, allows me to offer an hourly rate of just £9.40, before tax and NI, hardly a fortune, especially when you consider the level of personal care I am expecting those workers to undertake.  I would dearly like to be able to offer more but, as someone with no private income whatsoever to fall back on apart from my Welfare Benefits, I am stuck with just the funding my Social Services Department allows me every month for my long-suffering and excellent carers. Hardly enough at all.

Some of Mr Hammond’s £2bn needs to go towards this.

Then thirdly, there’s something which doesn’t affect me personally as yet. The amount that is available for both short, and long-term, residential Care Home accommodation. How can we expect older and disabled people to receive good quality, dedicated care when they need intesive care or can no longer live in their own home, if the amount Residential Homes are given for each resident’s care package is so small? We can’t

Some of Mr Hammond’s £2bn needs to go towards this.

What I really want to see most after yesterday’s display of Governmental generosity would be a completely new Care Strategy for our country. There needs to be meaningful consultation with the Care providers, the medical profession and carers themselves, both Home Care and Care Home agencies and workers and the Care Recipients, namely all the older and disabled people who need help to live in comfort and with dignity. We need to be assured that any extra or new funding is being spent wisely and well and is contributing towards the wellbeing of those who need it most.  

Some of Mr Hammond’s £2bn definitely needs to go towards this.

I am completely and utterly fed up.

Why can’t the DWP just leave me alone.

I have received yet another lengthy form from them which I have to read, complete and return, by the beginning of April.

This time it’s for a ‘Capability for Work Assessment’.

Its not the first Government form I have had to complete recently either. I had to deal with a Personal Independence Payment (PIP) form only last month after they decided that I, alongside many, many other disabled people, needed to be transferred from the Disability Living Allowance (DLA), which I have been receiving since 1998, to the new PIP Benefit instead. It’s not even as if completing either of these forms will give me any more money, the amounts will remain at exactly the same, pitifully small, levels. We never get any type of pay rise whatsoever.

And, as far as my impairment is concerned anyway, there has been no miracle cure either. No improvement, no divine intervention and no miracle medical advance in the past quarter of a century. My Multiple Sclerosis hasn’t got any better during the intervening years between diagnosis and now, it has only got worse. Thirty years on and it has only ever deteriorated.

But, despite this lack of movement, I still have to go through the form filling merry-go-round all over again.

What a complete waste of my time, their time, my ink, their ink, reams of their paper and their postage.

It’s not as if they’re short forms either. They expect me to write a novel, citing chapter and verse, excruciating detail after excruciating detail, about my condition and how it affects me on a day to day basis for every single question and there are an awful lot of questions. The new form is twenty-three pages long, the PIP form was much longer. I even have to give full contact details for my GP, my specialist nurse and my Consultant so they can all be sent a form to complete too where they will be asked to confirm that I’m not lying, exaggerating my condition or trying to cheat the system.  

I realise and fully acknowledge that the Government needs to make sure that the Taxpayer’s money is spent properly and wisely and that the people who are in receipt of Welfare Benefits are actually entitled to the money they are claiming but, for a disabled person diagnosed with a well-known and well-documented, degenerative condition which is never going to improve, however much the DWP, and I would like it, is, in my opinion, pointless.

I am now restricted to my bed most of the time, only able to get up for, at most, one day at a time from 10am until 8pm and then needing 3 or 4 days recovery in bed afterwards before I can do it again. I cannot get out of bed or dress myself without help from two trained carers. I need to be washed and dressed by someone and then hoisted from my bed and put into my wheelchair for the short periods when I do get up.

Exactly how many times and in how many ways do I have to tell the DWP that I cannot walk, cannot stand, cannot move from one chair to another unaided, am doubly incontinent, have a catheter, and have to use an electric wheelchair. I cannot write with a pen or pencil, lift a carton containing a pint of liquid, put something in my top pocket, fold a letter and put it into an envelope  or even move an empty box  without help.

Why can’t they just leave those of us with a life-long, incurable, degenerative impairment, such as MS, alone, once we’ve told them about our condition and the affect it has upon us. Do they think we need to be continually reminded of the effects of our conditions?  No matter how many times they ask, and regardless of the never-ending avalanche of paper they keep sending me, when will they realise I am not going to get better and that having to complete form after form is not going to help.

I would dearly love to be able to get up and go out to work but it’s not going to happen. All these endless forms do is make me feel depressed and distressed thanks to being constantly badgered and reminded what I can no longer do and what I am unlikely to ever be able to do again. They don’t ‘incentivise’ me at all so stop trying. Read my responses on both this, and the previous form you sent to me, make a note of them and then employ a little bit of common sense before you try asking me again. I’m stuck with this disease until the day I die and I don’t need you to keep reminding me. I am well aware of that fact without your havy-handed and insensative intervention.

I have only one further thing I want to say to you on this subject and I would be grateful if you listened for once.

Please leave me alone…

I am getting entirely fed up with the number of adverts I am seeing on my TV for lotteries and, in particular, lotteries for charities.

Seemingly endless ways of people wanting to take my money for largely, no return.

RNIB, Poppy Lottery, Oxfam, Cancer Research, they’re all doing it. The list is never-ending.  

Why are these charities spending, what must be thousands, on this sort of TV advertising and why are they pandering to our ‘get rich quick’ society. Why re they trying to take our money for virtually nothing. Celebrities don’t do these ads for free, they charge, the TV companies showing the ads don’t air them for nothing, they are out to make a profit. £1 per week here, £1 per week there, for every pound spent on lotteries, that’s one less pound that could be spent on things more important things such as food, clothes, heating and lighting.

It all mounts up, there must be another way.

And, who are the people who spend money on lotteries, speculating on financial pipe-dreams? Is it the people at the top, the people with money to burn, the bankers, the politicians, the businessmen and women in the gilded skyscrapers of the City, the high rollers, the elite or is it the people at the bottom who just scraping by and who barely have enough for their daily living needs. The celebrities who are promoting these lotteries are unlikely to be buying their weekly ticket, the shareholders of the TV companies showing the ads are not dreaming of a big win, they already get that when their dividends are paid. A study in the USA in the Journal of Gambling Studies in 2012 found that ‘Those in the lowest fifth in terms of socioeconomic status (SES) had the “highest rate of lottery gambling (61%)’. It’s not the rich who are gambling away their money because that’s what it is, gambling, it’s the poor who have little enough disposable income as it is. I know that someone has to win and that some lucky people actually have, but the chances ‘It Could be You’ are vanishingly small.

Unlike the National Lottery, big-charity lottery players don’t even receive a ticket or have a thrill of anticipation, watching the balls being drawn live, checking their numbers off when the draw is made after yet another TV, get rich quick, game show. They don’t even know what their numbers are or which numbers have been drawn each week. Nothing to show for what they have spent. They just have the money taken out of their bank accounts, week in, week out for nothing more than an sophisticated raffle.

It all mounts up, there must be another way.

I know these charities do amazing things for their beneficiaries. I know they need to get their money from somewhere. Having worked for one of them I am fully aware of the great work that is being done, how much it costs and all the people who are being helped but, much of the time, the people paying out and buying the tickets are the very same people who are on the receiving end too. All too often the pound they spent on their ticket is going into the grants for good causes which they are using and benefiting from anyway.

Why not cut out the middlemen who are making and showing the ads and doing something else instead. If the celebrities, TV Companies and big businesses who have so much just gave just a little of it every year to Charities then we wouldn’t need the endless lotteries. And regular donations would be so much better and so much more helpful anyway. The big charities could still get their money and the smaller charities could still get their grants but there would be some certainty to the charity’s income. And the government could help too. Instead of giving tax-breaks to the rich they could give more of our tax money to the services that are currently being propped up by the charities operating lotteries.    

I’m not against people having fun or trying to dictate how people send their money but I do find the non-stop ‘it’s only a pound’ mantra more than a little cynical. Paying fifty pence on the raffle or the tombola at the church fete, school fair or country show, where players stand a reasonable chance of winning a box of chocolates or a bottle of bubbly is one thing but the big, national charity lotteries where your chance of winning anything meaningful are something else entirely.

It all mounts up, there must be another way.

Robin Hood robbed the rich to give to the poor but we appear to be robbing the poor to help the poor down the road whilst the rich sit in their ivory towers raking in the proceeds.

There has to be another way.

I’ve been pondering.

Dangerous, I know, but the Daily Politics Show and the lunchtime news has got me thinking. Again.

And, today’s muse has led to me wonder what will be my, and our nation’s, enduring memory of our current Conservative Government.

What will we remember in the years to come.

What will be their legacy.

Good, bad or indifferent, what have Mrs May and her compatriots done that will stay with me past the end of her tenure in Number 10? What have they done which will leave lasting impression?

And I have just realised what I think it is.

Crisis after crisis. A never-ending stream of crises. My life, the lives of my friends and family, the lives of so many people in this country, appear to be doing little more than lurching from one crisis to the next. And the Government and its policies are largely the cause of this.

I know that we are in the midst of seismic political change in this country, with last year’s Referendum and the imminent triggering of Article 50, and that will crtauinly be unforgetable, but I don’t think that’s what I am likely to remember the most. I think the thing I will remember is the never ending series of crises we appear to be having. Day after day, week after week, month after month.

We currently have a major crisis in the NHS, due to a lack of funding, and our hospitals are struggling to deliver the medical treatment we all need.

We currently have a crisis in Social Care, due to lack of funding, and our Local Authorities are struggling to ensure that our disabled and older people receive the care in their own homes they need to live the independent and stress free life we all deserve.

We currently have a crisis in our education system, due to a lack of funding, thanks to a teacher supply shortage, unmanageable workloads and serious underfunding placing an insurmountable pressure on teaching staff in schools and colleges

We are now told we have a crisis within our Police Service, diue to a lack of funding, where forces nationwide are having difficulty recruiting and retaining detectives, which is harming response times and there has been an erosion in neighbourhood policing.

And what is it that all these crises have in common?

Funding, or rather, a lack of it.

Our health service is underfunded. Our Social Care Services are underfunded. Our Police Force is underfunded. Our Education System is underfunded. Underfunding seems to be the cause of crisis after crisis and this serious lack of money across the board will mean, in reality, that things can only get worse. Our services cannot continue to be run on a negative bank balance. Things need to change and they need to change fast. I’m not an economist, a financial whizz-kid or a politician but, even I can see that more money needs to be found, from somewhere, and it needs to be found soon if we are to avert a cataclysmic crash. And, finding that money, may be the greatest legacy this Government could leave both us and the generations to come.

There must be a way we can be led back from the brink of disaster and, as far as I am concerned, it’s up to Mrs May and her cohorts to do it if this plethora of problems is not going to overwhelm us and ruin our lives, and the state of our nation, for generations to come.

Finding the solution to all these crises would be the greatest legacy this Government could leave. We can only hope they find that solution soon, before it’s too late. .  

Sorry. I am more than just a little bit angry.

Yesterday, as I usually do, I switched over to my daily dose of ‘Daily Politics’ on BBC2 at lunchtime and saw something that made me fume.

The programme started off with it’s usual collection of serious stories such as John Major’s speech about leaving the EU, rebels in the House of Lords and a variety of other Brexit related topics but, at the end of the program, and probably as a form of light relief, they showed the annual Parliamentary pancake race. MPs and Lords -v- journalists, ‘sprinting’ round a marked course, in the pretty little park by the Thames, whilst trying to toss cold and inedible pancakes.

Nothing of national importance, just a bit of fun.

Well, it was until they did an interview with one of the winning team of politicians. And it was that which made me fume as I munched my midday meal. My anger was directed towards one of the successful team of Tory MPs.

I can’t remember his name but, what he said, infuriated me.

When the presenter asked him why he had taken part in the race, the MP laughed and said that it was just a bit of fun but, it had a serious side too and helped raise money for charity. He was then asked which charity and he said ‘Rehab’.

Now, it’s not the Charity I have a problem with. Rehab do great work and, like so many other charities, needs whatever money it can get. That’s not it, that was not the problem. No, it’s what this politician said next that made me so angry. He gave a little laugh and then said “It’s a bit of a laugh and it’s good to be supporting a charity that is looking to help promote independent living for disabled people”.

And that was the point my cage was well and truly rattled.

How dare he say this only a day after ‘Personal Independence Payments’, the most important Welfare Benefit for thousands of disabled people, was cut for new claimants by HIS party. And this isn’t the first cut or major change either, it is just the latest of many. Employment Support Allowance has been severely restricted, Attendance Allowance is under threat. Unfair PIP assessments have lead to disabled people losing their cars or being denied benefits entirely. The Independent Living Fund has been axed. Cuts to the Access to Work scheme are imminent. The financial assaults by this Government on the independence of people who who are sick and disabled, through no fault of their own, has been neverending.

And then we get idiots like this politician almost rubbing it in.    

If he really cared about helping disabled people gain independence then maybe he should have done something concrete to actually help and voted against this move instead of just running around a square, flipping pancakes, badly. Maybe he should actually look at the harm his Party’s policies have done. Disabled people have lost so much as a result of the never ending assaults on our hard-fought for allowances and benefits. People have been restricted to their homes because of these cuts. People have lost their jobs because of these cuts. People have lost their vehicles because of these cuts meaning they have lost independent access to local shops, their GP’s surgeries, life-saving hospitals and vital leisure activities. People have lost their homes. People have actually died and he doesn’t even seem to care.

Here’s an idea for you, oh unknown Tory Politician. If you really want to support disabled people and help us gain our independence why don’t you try opposing proposals to cut our support instead of waving it through on the nod. Pancake racing may be fun and result in a great photo-opportunity for you but it actually doesn’t help us. It may raise a bit of cash for charity but cash for our benefits could do so much more for us. Try cutting the cuts and see what that does for our independence, you might be surprised.

Flipping your pancake, running in the park and posing in your shorts and T-shirt on TV won’t really change anything for us but flipping your support for punishing policies and opposing even more cuts just might.